Saturday, April 27, 2013

Super Sad

So here is an update on both myself and my dad.  First me! I am doing well. Still taking chemo pills everyday. Nothing has changed, mostly good days, and some yucky days. Yucky days seem to come when I over do the day before. But, I love to get out and move. If I learn to eat better I have better days, but when I make not great choices my belly gets a little mad at me. Maintenance drugs are going well. I go every Wednesday 2-6 hours. Baseball is starting and school is coming to an end! WAHOO! Love the weather and can't wait to play outside all day!

Now for Daddy~ :(  Not going so well. His esophagus is severely burned from radiation. He is unable to eat, drink, or swallow. He has lost 15 lbs in 5 days!!! He is miserable. We all love food, there are food commercials galore, and we all have to eat...it is pure torture! He is extremely dehydrated! They have given him 4 bags of fluid, and they still weren't able to draw blood. He is so weak and pale.  Yesterday, he decided to get a feeding tube. Collett and I went down to sit with him and my mom, to try to provide a little support, He got a feeding tube placed at 1:15pm and after hours of waiting, calling, and being down right pushy, we got a home health nurse to the house to hook him up with some nutrients around 7pm!!! He is hooked up 24 hours a day! Every couple of hours my mom unhooks the thicker stuff and gives him some water and/or Gatorade. He doesn't plan on eating anything until the esophagus heals some. His Petscan was on Friday, so hopefully he will get results soon. He meets the second surgeon on Monday to get surgery scheduled. The surgery will be a big deal, and quite the recovery but it is a step closer to being DONE with this crap!  His Dr. is very positive for a full recovery.

For me this has been a lot more emotional. I didn't cry much for me, but my dad, I HATE IT!  I was completely fine with me taking it all on. I know the pain and torture! Thankfully his chemo was good to him, but the dang radiation is terrible. His pain is way worse than mine! Mine was on my head which was bad enough. But his burning and pain affects everything he does to fight this. Food and water is so important. Just sucking on a life saver hurts. UGH, it just makes me sick and very sad.
THANK YOU for your continuous prayers, love, and support.

7 comments:

  1. Praying for everyone! Tell your dad to hang in there, it gets better!

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  2. Love you guys! Keep pushing through! We are still praying for you everyday. Give your Dad live from us.

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  3. Love love love you both and know what fighters you two are!

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  4. oh no... that is so sad. Good luck to you both. Glad you are getting around more these days. it's fun to see you out and doing things.

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  5. Charese,
    Your family is always in my thoughts! Hoping and praying your dad heals quickly. Hugs!!
    ~Chanda

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  6. Love you Charese! Prayers for you and your Dad

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  7. Charese, We are praying for you, your Dad, your Mom and the rest of the family. We personally how hard a feeding tube is. Our grandson has had a feeding as his only source of nutrition for three years now. It is hard for him to be around others who are eating, parties, smells from the kitchen, etc. Our hearts go out to all of you. The Dodds

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