Saturday, April 27, 2013

Super Sad

So here is an update on both myself and my dad.  First me! I am doing well. Still taking chemo pills everyday. Nothing has changed, mostly good days, and some yucky days. Yucky days seem to come when I over do the day before. But, I love to get out and move. If I learn to eat better I have better days, but when I make not great choices my belly gets a little mad at me. Maintenance drugs are going well. I go every Wednesday 2-6 hours. Baseball is starting and school is coming to an end! WAHOO! Love the weather and can't wait to play outside all day!

Now for Daddy~ :(  Not going so well. His esophagus is severely burned from radiation. He is unable to eat, drink, or swallow. He has lost 15 lbs in 5 days!!! He is miserable. We all love food, there are food commercials galore, and we all have to is pure torture! He is extremely dehydrated! They have given him 4 bags of fluid, and they still weren't able to draw blood. He is so weak and pale.  Yesterday, he decided to get a feeding tube. Collett and I went down to sit with him and my mom, to try to provide a little support, He got a feeding tube placed at 1:15pm and after hours of waiting, calling, and being down right pushy, we got a home health nurse to the house to hook him up with some nutrients around 7pm!!! He is hooked up 24 hours a day! Every couple of hours my mom unhooks the thicker stuff and gives him some water and/or Gatorade. He doesn't plan on eating anything until the esophagus heals some. His Petscan was on Friday, so hopefully he will get results soon. He meets the second surgeon on Monday to get surgery scheduled. The surgery will be a big deal, and quite the recovery but it is a step closer to being DONE with this crap!  His Dr. is very positive for a full recovery.

For me this has been a lot more emotional. I didn't cry much for me, but my dad, I HATE IT!  I was completely fine with me taking it all on. I know the pain and torture! Thankfully his chemo was good to him, but the dang radiation is terrible. His pain is way worse than mine! Mine was on my head which was bad enough. But his burning and pain affects everything he does to fight this. Food and water is so important. Just sucking on a life saver hurts. UGH, it just makes me sick and very sad.
THANK YOU for your continuous prayers, love, and support.

Monday, April 8, 2013

The latest MRI results

So I had my MRI this morning to see if the brain tumors are gone. I have been taking the Tykerb (chemo pill) for over 8 weeks now. I called Dr. H to let him know I had it done so I could get the results today so I know if I continue taking these pills. First these pills have their days! Some days I am really icky and live in the bathroom. My belly gets really bad cramps, and I am extra tired. I have a slight rash on my face that looks like little zits, but so far they haven't taken over. Other days, I am good. I can accomplish a lot, sometimes I can even go without a nap!! Now that is progress. My hair is sloooowwly coming back, but I do have some!
Dr. H called me right back and said " Charese I have good news about your MRI..." YAY! I say! " well there are no NEW tumors!" ugh! So the 4 pesky tumors are still there! They can't really tell if they have grown due to swelling around them, but if they have he said maybe only 1 mm. The good news is that there are NO new ones, and they haven't grown or spread, which means the Tykerb is working! I just get to stay on it longer. oh yeah! 
I am now back to getting treatments every Wednesday. While taking these chemo pills and getting the maintenance stuff I tend to be sicker for a couple of days.

As for my dad....
He is doing well! Not to many bad side effects. More tired than usual and gets some leg cramps. Food doesn't always taste the same. The worst is yet to come for him, when he does surgery in May.  The good news is, he hasn't lost his hair! He is still able to work and do what he needs to.

OVERALL, We are both doing well and hanging in there! We really appreciate your love and support!

Also, wanted to tell you that My dad, mom, and myself were able to receive a wonderful blessing from Elder Kukuchi again. That was very comforting! It was an amazing experience! We are so grateful for his willingness to always come to us and bless our lives.

LOVE YOU ALL! Please keep praying! Prayers are still very much needed!